I was 26 years old when my mother died of ovarian cancer. Her mother had died of breast cancer. In the 1980’s we had begun to hear about the connection between ovarian cancer and breast cancer but there was no way to be tested. In fact, by the time I was 40 (over 16 years ago) testing was still not readily available. I chose to have a prophylactic hysterectomy and oophorectomy as a precaution, a prevention to having ovarian cancer. And breast cancer.
While I was recovering from my hysterectomy, I launched HysterSisters. It’s amazing to look back on my journey – and seeing the people God has brought along my path. Staff members. Volunteers. Doctors. Sponsors. Each have contributed to making HysterSisters the best place on the internet to receive support and information for hysterectomy and all things gynecologic.
And it turns out that we discovered that we are a BRCA1 family – with a real mutation identified and recorded. But I am negative. Isn’t that amazing? And wonderful.
But because I’ve walked this path, my heart leans towards the women who are BRCA related or genetically predisposed towards cancer – ovarian and/or breast.
If you are struggling with choices about your hysterectomy for fibroids, endometriosis, BRCA, GYN cancers, pelvic floor prolapse or menopause issues, check out HysterSisters Hysterectomy website for resources. Once you join, you will have access to the community and to the Hysterectomy Checkpoints (timed information based on YOUR surgery timeline.)